Tuesday, May 5, 2009

May 4th Update

update from Kayla's grandma...

Well our little Kayla is still in the hospital, she still can not keep any food or liquids down the doctors think they will keep her a few more days. Good news is all of her levels and blood tests are very good, her blood pressure is a little low and she has lost a 1 pound, apparently the 7th day after chemo is when her levels and counts will start to drop. They started her on some sort of nutritional drip that will feed her all kinds of good stuff tonight. Great-Grandma Shirley is staying at the hospital with her tonight. I went back to work today and was miserable all day, all I did was think of her. I went to hospital this evening and spent about 3 hours with her. She also did really well with physical therapy today and actually walked a little without her walker. The nurses gave her a doll with a central line so that Kayla could learn to give the baby doll her med's and flush her line just like we will have to do with her, she still says she wants to be a doctor when she grows up.

Thanks again for all the prayers, we appreciate it so much!!!!!

Saturday, May 2, 2009

kAYLA iS aMAzING AnD Im SO bLESsED tO HavE SuCh A stROng LIttlE gIRL

Friday, May 1, 2009

Kayla we all love u so much angel face. Im so proud of her. I cant believe this is real but I know God will bring Love through this miracle

April 30th update...

Update from Kayla's grandma -

Kayla had a blood transfusion yesterday and then began her chemo therapy. The chemo will be used to shrink the tumors in her leg for a 10 week period (she will have chemo every 2 weeks during this time). Kayla will be able to come home from the hospital in between treatments. Around the 2nd or 3rd week of July Kayla will have her surgery to remove her leg about mid thigh area. Although the doctors found another small tumor near her growth platelet in her upper thigh they are hoping the chemo will dissolve it so that they will not have to amputate her entire leg.

Kayla is still in very good spirits and loves all of the doctors, nurses, staff and volunteers. She has had many visitors from her daycare center and her Great Grandma Shirley is here with us now.

Kayla's treatment today went well, but she was extremely tired as she and Tim had to get up every hour (for 6 hours) and then every 2 hours (for 10 hrs) during the night to go to the bathroom to empty her kidneys of the chemo treatment. Tonight is my turn and I'll have to do the same. This round of chemo will be finished at 10 p.m. tomorrow evening, if all goes well she may be able to come home on Sunday.

Thursday, April 30, 2009

Please Pray for Kayla!

My name is Nikki, and I am the proud auntie of a wonderful girl (who really is a woman, but I still see that cute little girl face when I think of her) named Heather. This past week Heather was given the news that her 3 year old daughter, Kayla, has cancer. I want to introduce you to Kayla, and also give some information on the type of cancer she has. And of course we are starting this blog to get as many prayers for Kayla as we can!

While playing at the park Kayla's grandpa noticed when she was running there was just something a little funny about the way she was running. He thought maybe she had possibly dislocated her hip, or something of that nature and took her to the doctor. The scan revealed tumors on her femur bone, as well as spots of cancer on her lungs. Think of the shock, the pain, all the emotions of finding out this beautiful little girl, with no symptoms...has cancer.

This family, this precious girl, needs all of our prayers.

I want to tell you about Kayla. She loves the Disney Princesses as most girls her age do, so much in fact she wants her Mommy to wear her bridesmaids dress from her cousin's wedding to look like Cinderella for her :) She loves for her Mommy to tell her bed time stories, and loves to hear about Mommy and Baby senarios.

Kayla loves Dora. She loves to cook. She is a very colorful child and is always thinking of others. This is a brave little girl, one who is a warrior and is going to beat this!

Her Mommy calls her Goose and Pumkin Face :)

Now about the cancer...

What is Ewing's Sarcoma? Ewing's Sarcoma is a very rare form of bone cancer that strikes children and adolescents. Actually, it is a group of four different types of cancer, known collectively as the Ewing's Family of Tumors (EFT). About 250 cases are diagnosed every year in the U.S. The good news is that two-thirds of patients are long-term survivors of the disease. Although it can occur at a younger age, most Ewing's sarcoma cases are found in children aged 10 to 20.

Treatment - Children with Ewing's sarcomas undergo intensive cancer treatment. Once diagnosed, the child is immediately put on a multi-drug chemotherapy regimen. After about nine weeks, the patient will either undergo surgery to remove what's left of the tumor, or radiation therapy if surgery is not possible. After that, the chemotherapy is continued for a total of up to nine months.

In the past, surgery on tumors in the arm or leg bones almost always required amputation. Limb-sparing surgery techniques, such as bone grafts and artificial bones, can help certain patients avoid losing an arm or leg. The outlook for many Ewing's sarcoma patients is optimistic, except in cases where large tumors cannot be completely removed or have metastasized (spread) to other parts of the body.